About Us

The All-Russian Public Movement of Parents of the Rare Endocrine Disease McCune-Albright-Braitsev Syndrome (MOB). The movement was founded in March 2025 at the initiative of parents of children with MOB. The movement's primary goal is to help children with rare diseases realize their constitutional right to treatment, modern diagnostics, rehabilitation, and social support. Providing up-to-date medical information (MOB). Plans: Development and implementation of projects to provide information support to patients, parents, and physicians in the Russian Federation. Search for patients with the syndrome (MOS). Information and educational support, research, and other activities aimed at improving the quality of life of patients with (MOS). Developing connections between patients and their parents with (MOS). Monitoring the development of Russian medical diagnostics of the disease (MOS). Monitoring the development of international medical diagnostics of the disease (MOS). Legal support for patients and their children.